There were lots of things I was completely ignorant to when it came to coeliac disease. My best friend has been diagnosed with it for about 10 years now but I still had no idea about the cross-contamination side of things until Charlotte was diagnosed.
Did you know that even a crumb of normal bread can actually harm someone with coeliac disease? This isn’t just an intolerance where you might get a bit bloated, gluten actually kills part of a sufferers intestines so that it can no longer absorb vital nutrients.
Because of this it is suggested that you should change a number of things which you may never be able to say is completely gluten free. So the literal cost of coeliac disease for us so far is…
1 toaster £25
3 baking trays £7.50
3 chopping boards £5
2 non-stick frying pans £25
4 plastic spatulas £8
3 mixing bowls £14
Officially I shouldn’t use a dishwasher which has previously washed glutenend items but unfortunately my budget doesn’t stretch to a brand new dishwasher quite yet, although I am thinking its a very good excuse to bring my ‘new kitchen’ project forward a bit!
This doesn’t even take into account the fact that gluten free products are SO much more expensive to buy that the gluten filled alternatives. Bread which tastes similar to normal bread can have a mark up of at least £2 more than your average white sliced loaf.
Luckily, in most of the UK, diagnosed sufferers can get some items on prescription, however, this is a minefield and we’re currently trying out every option available to find out what is edible and what is definitely not!
There is talk of the prescriptions being scrapped, especially adult ones and if they’re not scrapping them, they’re making the list of things you can have shorter by the day. Thankfully Warwickshire seems to be holding on to most items for now but I’m sure it’s only a matter of time.
Obviously the biggest cost is Charlotte’s health and this is the reason I am happy to pay for all these items…now just to work on friends, family, restaurants and schools to make sure they’re as precious about her health as I am.
Another long hiatus from me I’m afraid. I don’t know how other bloggers do daily posts…weekly seems difficult enough for me! But then maybe their not juggling all the other things too. Work is full on, home is full on and I’m now taking on the challenge of being a completely gluten free household too as, after the biopsy, we had confirmation that Charlotte does indeed have Coeliac Disease. Just what we needed!
So I’m now trying to work out what this means and how it will affect our lives…so far I’ve come to the conclusion that it will affect it a lot!
I have to admit I have become a lazy cook. We go out for food quite often and we eat ‘easy’ foods. I’m not happy with this scenario as I used to love cooking and trying new things but time has not been on our side and I’ve recently been picking the easiest options. After a trip to Bill’s Restaurant and Starbucks I’ve realised this can not be the way forward. The options available for a four year old Coelic are non existent and this in turn means a hungry child and a stressed out mum! So I’m going to have to go back to basics, meal planning and cooking from scratch. Great! When the hell in going to fit all this in I’m not sure yet!
My high pressure project had a very brief quiet moment last week and I had time to take stock and realise that Charlotte has actually been quite poorly and getting worse over the past few months. Cue ‘worst mum in the world feeling’. She’s tired all the time, she’s waking during the night again, she’s grumpy and so am I and she is catching every bug going. I have also slowly been gaining more and more weight because of this unhealthy lifestyle we’ve slipped into so we need the change but I’m petrified. There’s so much to take in and implement and it seems so overwhelming. So rather that deal with it right now we’re running away on holiday in the hope we’ll both be rejuvenated enough so get cracking on the change when we get back.
So now I have to focus on washing and ironing in order to pack and work out what the hell i’m going to wear by a swimming pool so I don’t look and feel like a beached whale.
Anyone got a tarpaulin I could borrow??