One of the things that has been going on in my world that I am yet to mention on here is that my daughter has recently been diagnosed with Coeliac Disease.
This seems to be a more common illness than I thought but I am still really nervous about how this will change both our lives. We are yet to remove gluten from her diet as she has an endoscopy booked in for Friday and we need to keep eating it in order to see the damage it is causing. So essentially, since the first blood test results in early December I have been knowlingly poisoning my daughter with bread, pasta, doughnuts, biscuits etc. This has not helped with my wellbeing over the past months alongside everything else.
My best friend has Coeliac Disease and has been diagnosed for a while now so when I got told by the consultant that the blood tests showed she had this I felt like I knew more than most about it. But adapting this to a four year olds diet scares the shit (pardon the pun) out of me. I also found out that my ex was diagnosed with borderline Coeliac Disease after we had split but I had no idea that it could be hereditary so didn’t even think about it!
I also had no idea that the symptoms she was showing could have any correlation with Coeliac Disease. I actually took her to the doctors as she seemed to be having persistent, reoccurring pins and needles in her arms and legs. It was one of those times when the mummy bear instinct kicked in and said ‘somethings not quite right here’. Luckily, or unluckily, I was right but it’s still taken a long time to get to this point.
So on Friday I have to try and explain why she needs to be put to sleep in a big, new hospital without crying (her and me!) and then I have the even more difficult time of making awkward conversation with my ex and whilst trying to suppress the urge to kill him at any point!
I’d love to hear from any other parents who’ve been through this process so please leave a message in the comments below. I’ll keep you posted on how we get on.